I want to be honest about my more troubling emotions; about my reactions to difficult situations that aren’t easy to resolve.

This week I attended a meeting with a group of people with various disabilities. I was one of 20 attendees joining a commission focused on creating greater access. I should have felt hopeful. I might have felt proud. But I was sick at heart. The agenda was overloaded with seemingly intractable issues. I sensed the subtle but perceptible drag and resistance to concrete action that leads to change. Committee notes read like a list of meetings attended. But to what end? I felt a pit in my stomach. I had a bad taste in my mouth. Then I was overcome with a visceral hit of self hatred. I was representative of the enormous failure of society. I am the problem, and I can’t fix the problem. It didn’t seem like anyone else could, either. Was I becoming part of the problem? My impatience and skepticism at that moment certainly didn’t make me part of the solution.

Shifting a system seems to proceed at a glacial pace. “Don’t worry, we’re working on it.” That’s the external message. “Don’t worry, I’m working on it.” That’s my internal mantra. But where are the breakthroughs? How can I bring about a breakthrough?

With story after story of barrier after barrier, from blatant ignorance to needed curb cuts, it was painful to see how my peer group was being treated . “I’m not going to go away.” That’s what I muttered to move away from my bleak mood. “If nothing else, I’ll stay stubbornly present.”

As someone who is not part of the dominant power structure, self hatred is a common part of my existence. It is learned behavior. It is culturally constructed. It is a tool of discrimination. Vibrancy, youth, and athleticism are all good. But ability, like all those other goods, is malleable, and we are all on a continuum. Why is that so hard to accept? Why am I so hard to accept?

I know that I do not reflect those glossy images of success. Being self-propelled, I have a hard time keeping my hands clean. They are definitely worse for wear. Juggling food is a challenge, too, so I often wear at least a bit of my meals. I get jarred by potholes and cracks and uneven sidewalks. At the end of every day, I don’t feel so clean and shiny. Instead, I am bruised and battered and dirty.

Marked as I am, how do I make my mark? I’m conflicted. I believe in collective action. I know that change can come through extended conversation and group process. I have theĀ strength and will to participate in campaigns that try to shift perceptions. But I’m more content when I tackle access issues as an individual. I try to make headway through personal relationships. When I was a counselor, I worked one-on-one, so I think I’m more effective in those settings. Is that why I find it hard to function as a member of a coalition? Or is it that I can’t bear to see my own vulnerability reflected in others? Nothing to see here, that’s what I exude. But there is so much to see: loss, fortitude, sorrow, faith.

If only I had a better mirror.